Wish kid, Luke, age 6, will benefit greatly from his Make-A-Wish® multi-sensory room. “This is truly something Luke needs and we can’t be more excited”, says Kate (Luke’s mom).
Luke suffers from Pallister Killian Syndrome, a very rare genetic condition in which a person has four copies of the short arm of chromosome 12 instead of the normal two copies. Luke struggles with lots of disabilities, including visual and hearing impairment, physical limitation, and cognitive impairment.
Despite his illness, he is a very happy little guy. He loves to explore the environment around him (in-doors and out). Luke is non-mobile, but thoroughly enjoys scooting around the house to find something new and fun. In addition to being non-mobile, he is also a non-verbal child. However, he is able to express himself using facial expressions and/or making noises. Luke enjoys hearing the echo’s from his noises so he scoots from space to space to explore. A multi-sensory room will allow Luke to further develop by creating stimulation all in one place. Luke needs this type of stimulation to develop his perception of the world around him. This room is being designed to help engage Luke to learn through play. From following bright lights, shapes and patterns with his eyes to feeling textures and panels along the walls. Also due to the flexible functionality of these rooms, it can also be used to calm and de-stress.
“Luke is a blessing to us. When we received his diagnosis at age 15 months, we were absolutely devastated. However, Luke has shown us that he was born just as he is, and he is truly a happy kid! It was us parents who benefited from the lesson of acceptance and unconditional love – as Luke never has less”, said Kate.
Experience the joy that Luke had during his wish...